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“I have watched my beautiful niece, Ariya, bravely battle INAD every day of her life with incredible strength. With the love and support of our community, I am confident that we can help find a cure for INAD during Ariya's lifetime, which will have a tremendous impact on the lives of so many families around the world whose children suffer from this terrible disease.”
–Jagruti Panwala, President & CEO Wealth Protection Strategies
Ariya’s Wish is a campaign started by Leena and Anil Panwala, the founders of the INADcure Foundation, in honor of their daughter, Ariya. Ariya is also the inspiration behind the INADcure Foundation. Ariya was only two years old when she was diagnosed with INAD, a rare, genetic childhood neurodegenerative disorder often described as “childhood Parkinson’s and ALS.” With no cure or FDA-approved treatments to slow or stop disease progression, most children with INAD do not survive past age 10.
At the time of Ariya’s diagnosis, little was known about the disease, and there was no centralized effort dedicated to advancing disease understanding and driving research towards a cure. Now, because of Ariya, a treatment for INAD is within reach, and hundreds of families around the world have hope.
About the INADcure FoundationThe INADcure Foundation is a 501(c)(3) nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN). The INADcure Foundation is raising funds to develop gene therapy for INAD, the most promising treatment for this genetic disease.
Click below to learn more and help. Your tax-deductible donation will help fund a cure for Ariya and all children with INAD.